Today I will take a break in my series of Panamanians posts and publish a post that has been forging in my head for several weeks.
In September my daughter Isabel told me with tears in her eyes about a new song that Taylor Swift song, one of her favorite singers, had sung at Stand Up To Cancer gala. The song was dedicated to a child who had died of cancer, called Ronan.
At first I did not pay much attention because, to be honest, I thought it was just a publicity stunt. However, as she kept insisting on me that it was true, I decided to search on Google and get to the bottom of it.
Eventually ended up crying myself in front of my computer, while reading the blog Ronan’s mother has been writing in WordPress since her son was diagnosed with Neuroblastoma (a form of cancer that primarily affects children) in August 2010.
Maya Thompson opens her heart in every post and shares her hopes, anger, pain and frustration. After the death of Ronan, Maya and her “group of angels” created a foundation dedicated to finding a cure for neuroblastoma, The Ronan Thompson Foundation, and her inexhaustible work has led her to become a symbol for all those mothers who have lost a child or have sick children .
Thanks to the power of her blog, her story reached the ears of Taylor Swift who wrote this beautiful song with phrases from posts by Maya. Every time I listen to it my heart breaks, not only for the suffering of Maya, but also by the uncertainty and fear to think that something like this could happen to any of my children.
As I said before, Maya has become a celebrity in the fight against childhood cancer, but his case is not unique, there are other mothers who struggle daily with this or very similar situations.
Anne-Dauphine Julliand is the mother of Thaïs, who with only two years was diagnosed with a genetic disease, metachromatic leukodystrophy. Thaïs passed away, but before that Anne-Dauphine promised her daughter that she will have a beautiful life, a life she could be proud of, a life filled with love. Anne has written a beautiful book that tells her story, that of Thaïs and her family.
To celebrate and support these and other brave women who remain anonymous and to call upon the importance of their cause, I have resorted to the tools I have at hand: cooking and blogging.
These cookies are dedicated to Ronan, Thaïs and many children suffering from these diseases. With this post I invite you to get involve, collaborate and participate in associations and foundations dedicated to fighting childhood cancer and other diseases that rob so many children of their childhood. As Maya would say, live like a Rockstar!
They took me a lot of work, a lot of time. I made them and re-made them a few times, and I know they are not perfect, but the time I invested in making them, with my children fluttering around me, made me feel a little bit closer to Maya and her beautiful boy.
These sites will inform you about The Ronan Thompson Foundation, Maya’s blog and the book of Anne-Dauphine. And this is the link to buy “Ronan“, the song by Taylor Swift. Maya is listed as coauthor of the song and her benefits go to the Foundation.